Pediatric Palliative Care

Clinical Guidelines & Helpful Resources:

•  Preparing for Your Child's End of Life  (Guide to be given to parents)
  
  
• End of Life: What to Expect (Guide to be given to parents)

• The Blue Book For Peds (Pediatric Pain & Symptom Guidelines)

• AAP Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations (2013)

• National Project Guidelines
  

  Training Recommendations by Discipline
   Pediatric Physicians (Pediatricians)
   Pediatric Physician Assistants
   Pediatric Advanced Practice Registered Nurses
   Pediatric Registered Nurses
   Pediatric Social Workers
   Pediatric Chaplains
   Pediatric Psychologist

• National Hospice and Palliative Care Organization (NHPCO) Standards for Pediatric Hospice/Palliative Care (Will need to sign up for free membership to access)

• American Academy of Pediatricians (AAP) Pediatric Hospice/Palliative Care Clinical Practice Guidelines

• American Academy of Hospice and Palliative Medicine (AAHPM) Pediatric Hospice/Palliative Care Competencies

• National Association of Neonatal Nurses (NANN):

• Courageous Parents Network

• Perinatal Palliative Care Resolve Through Sharing Position Paper